I think that we would all agree that breathing is essential to living. When our bodies do not get enough oxygen, what happens? The most common reaction to a lack of oxygen is a sensation of panic, because our brain is very smart. Our brains tell our lungs to respond with small, quick breaths to compensate for the feeling that we do not have enough air. Loss of oxygen and/or breathing problems make us pay a big price when it comes to our health. One of the most common breathing problems is Chronic Obstructive Pulmonary Disease (COPD).
There are many places on the internet that explain the process of how oxygen is carried from the lungs throughout the body. If you currently have breathing problems you know from your Priimary Care Physician and/or Pulmonologist that once your breathing problems start to affect your ability to function, they can no longer be ignored. Your physician and treatment team have many medication options to choose from, with the primary goal being; to open up your lung capacity to breathe more easily.Some people think that if they take off their oxygen when they do activities and "test their lungs," that they do themselves a favor and are strengthening their lung capacity. For most people the reverse actually happens. The lungs have to work harder and the person becomes more fatigued. If you have been told to wear your oxygen for a certain number of hours per day, or specifically when you are doing activity, please follow your physician's advice. Not wearing your oxygen does not make your lungs stronger. It makes you feel weaker.My concern is your ability to function (as always). What type of functional limitation do breathing problems impose on you? The most annoying limitation that patients complain of is Fatigue or Decreased Energy. It makes sense though. With a decrease in your ability to oxygenate your body; your muscles, nerves, brain and all vital organs do not get to the same level of strength you used to have. So the plan to manage these conditions functionally is to CONSERVE ENERGY.You need to conserve the energy you do have, and not waste it all on the necessary activities you HAVE to do, but try to save some energy for the things that you LIKE to do.Please realize that your physician and treatment team know your needs better than I do, and this advice NEVER should take the place of what you have been told to do by them. But, here's what I want you to try. I want you to modify your approach to your Activities of Daily Living (ADL'S). We call this; Using Energy Conservation Techniques.
This is something that most Occupational Therapists preach to their patients. Some listen and some don't. I am just asking you and your care-partner to try a few of these ideas and see if they help:
Start out by preparing your area:
Get your underwear, clothes, (including shoes and socks) 2-3 hand towels, shampoo, soap and any other things you need.
1. Sit to shower. (Look under the HOME MANAGEMENT TAB for specific equipment ideas)
2. If you are on oxygen, wear your oxygen in the shower; remove the nose piece to wash your face, but otherwise keep it on.
3. Have your towel within easy reach of your seated position, and stay seated to dry off. * Use 2 or 3 small hand towels to dry
off instead of one large towel. They are easier to manage and require less strength to use.
4. If you don't already have grab bars in your shower, you need to have at least 2 installed.
Refer to the HOME MANAGEMENT SECTION for more ideas on Home Safety.
5. Place a chair in your sink area, that has a back and arms (not a stool) and SIT to shave, groom, apply make up and brush your teeth.*
6. Put your clothes on SITTING DOWN. STAND ONLY TO APPLY YOUR UNDERWEAR AND PANTS.
* If you are on oxygen; wear it throughout all of these steps, only removing it when it is in the way.Once you have completed all of these steps, see if you feel less tired than you normally do. If so, it is just because standing requires energy and consumes more oxygen than sitting. Now, the goal is that you should be able to spend your extra energy doing something that is more enjoyable than just getting dressed and showering...."Now let's get going!"
If you would like to learn more about Sally Thimm OTR/L Occupational Therapy Services visit: Professional Case Management of SWFL
Alzheimer's Disease (AD) is a very challenging disorder that affects the brain's nerve cells. Many brain functions can become impaired in the process. Thinking skills, memory, and the development of behavioral changes are often the most obvious symptoms of the disease. Due to our aging population in the United States, this disease has been recognized as having a major impact on our social and healthcare systems.
There are stages of this disease where the symptoms can be mild, and a person may have functional limitations with their short term memory for example, and then there are those cases that evolve into a person requiring one on one care and monitoring 24/7, to avoid problems with safety in the home. Many informational resources are available on line. Some counties offer support groups and adult day care programs. If you do not have resources in your area we can try to help you locate options closest to you. The following list of suggestions may help you manage the care of a person with memory problems. Also look for specific suggestions under the Home Management Tab, associated with ways to assist a person manage their ADL's (Activities of Daily Living. ie. bathing, dressing and/or self care), when they have dementia.
Managing a loved one with AD or dementia requires patience and commitment. The caregiver needs to recognize their limits and work on establishing ways to care for themselves as well. It is very hard to provide care for someone if the caregiver is tired and overwhelmed. Make sure that the caregiver is well cared for too!
Find some helpful ideas under Care-Partner's Corner section of our website ! Now Lets Get Going! xo - Sally
If you would like to learn more about Sally Thimm OTR/L Occupational Therapy Services visit: Professional Case Management of SWFL
Dystonia is a form of movement disorder that has evolved into its own specialty area for treatment.
The definition of Dystonia is:
A movement disorder that causes the muscles to contract and spasm involuntarily. The neurological mechanism that makes muscles relax when they are not in use does not function properly. Opposing muscles often contract simultaneously as if they are 'competing' for control of a body part. The involuntary muscle contractions force the body into repetitive and often twisting movements as well as awkward, irregular postures. There are multiple forms of dystonia, and dozens of diseases and conditions include dystonia as a major symptom.
(Def.-Dystonia Medical Research Foundation)
As noted above, there are different forms of dystonia. Some forms evolve as a primary diagnosis for some people, and others develop dystonia as a secondary clinical feature apart from a primary diagnosis of another condition, (for example) Parkinson's Disease.
There are treatments available that can be life changing for people struggling with dystonia.Medication, chemodenervation and deep brain stimulation are a few that you can look into.
It is very important to know that you are not alone with this disease. Cervical dystonia is a very common form of dystonia and can be an underlying cause of severe muscle tension headaches. It is helpful to see a neurologist who treats movement disorders for an accurate diagnosis and treatment options. Many times people will complain of neck and shoulder pain and receive muscle relaxers and massage therapy prescriptions from their primary care physicians. No long lasting improvement is noted and it is a vicious, frustrating cycle.
The Dystonia Research Foundation has a video on their web site associated with starting a Dystonia Support Group, which is proof that "regular people" can start a support group and help one another. You can see this video here and let us know if you would like more information. Send us your comments through "Contact us!" "Now, let's get going!" xo Sally
If you would like to learn more about Sally Thimm OTR/L Occupational Therapy Services visit: Professional Case Management of SWFL
Well, here we have a topic that belongs to everyone. My intention is to put information here that is interesting to patients and caregivers that will motivate them to move their daily habits to more healthy choices.
So bring your thoughts and comments. What you do to bring yourself some inner peace each day may help another. Let’s face it….we need to refuel our “energy tanks” each day.
Stress is a killer. It makes you emotionally challenged and can make you physically ill. Some people need to take medication to manage their levels of depression and anxiety. What I am hoping for here is a way to share good energy and realize that we are not alone in our frustration and feelings of guilt, when we are tired of the job that we do each day as caregivers. It doesn’t mean we don’t love our friend or family member, it just means that we get tired. That is normal. What we do about it…that is the important thing.
Exercise? How about let’s move more! What are some exercises you can do during the day, without leaving the house? Housework is an exercise, but not much fun though. How about putting on some music and dance around the house while you clean up the kitchen? Or dust the living room. Make it fun! Try it. Let us know what happens. Music can be magic…to transform how you feePut on some head phones! Listen to music, or motivational messages. There’s lots of positive stuff out there! Let us know how you handle stress! Send us your thoughts! Let us know what you need! Go to “Contact Us” and share your story! “Let’s get going!” xo Sally
To learn more about the Occupational Services Sally Thimm OTR/L offers visit: Professional Case Management of SWFL
"Allergies" is a huge topic and there are as many different allergies as there are diseases. How each allergy affects one person, may affect another person differently. This section will discuss various allergies that are common concerns for people, especially when they are dealing with other medical conditions. The most important thing to remember is that you should have your individual allergies well documented on your current medication list, and make sure that all of your treating medical professionals are aware of them.
Sallycares.com is providing general information related to a number of medical conditions, and more will be added as we grow. The purpose here is not to place general information in these areas that you can find all over the internet. I will be placing new information and links to resources for the various areas, but our focus is on managing the symptoms that you are living with every day. Medical Conditions that are discussed are: Breathing Problems, Diabetes, Health and Wellness issues, Neurological Problems and Weight Management.
For example; when memory becomes a challenge we will look at the specific problems that reduced memory is demonstrating in the home, and give you ideas associated with how to manage them. Problems with managing your bathing or dressing due to physical limitations you have begun to experience will be discussed, and options for managing the problems will be suggested.
One thing you have to be aware of is how important it is to stay on top of whatever disease process you are dealing with. You want to do your research. You want to know if you are doing all you can do related to reducing the symptoms you are experiencing. Many times exercise and just increasing your general activity is helpful, even when pain is one of the symptoms you are trying to reduce.
Engaging in an activity that has meaning or enjoyment for you is very helpful. When you can get up every morning and do your daily activities, not be exhausted from them (because you are using energy conservation techniques), and you have the energy to do something that takes you outside of yourself and focus on something or someone else, it is very healing.
Negative emotions and negative energy are things that we need to discourage within us. They are not helpful. We can’t become more positive and reduce stress if we focus on the negative.
Disease causes people to have to change their lives. Living with pain, limited strength, problems with balance and difficulty walking are just a few of the problems people deal with every day.
What if we didn’t focus on them? What if we just accepted that they exist and we need to focus our energy on something positive? What would it be?
I often tell people that they begin to heal (sometimes emotionally – but not physically), when they 1. Understand what is wrong with them 2. Learn how to manage the condition.
In medicine we cure very few things. We treat diseases. Join Sallycares.com to learn more.
As a member you can always send us your questions through “Contact Us,” and we will be glad to review your concerns!
“Now, let’s get going!”
Sally